Archive for October, 2009

MRI

October 22, 2009

This is a picture of where I was 3 times today: 

Well, I wasn’t at this exact machine, but I found this picture on the internet.  I had to have 2 MRIs today–one on the breast area and one on my shoulder.  (From my surgery last March, the nerves and muscles were cut into in my axillary area and I have some resulting shoulder issues) So, right when I got home they called me to come BACK to do another MRI because the pictures under my arm were not clear.  Of course I panicked and worried, but they assured me that my surgeon specifically asked for the axillary area (under my arm)–and apparently those are tricky images to get.  

mri

My very first MRI was in March of 2008 and it was on an “Imaging Truck”–a mobile unit and it was HORRIBLE.  Since then, I’ve had my scans and MRIs at Huntersville Pres and they have an awesome new machine there, so it’s not that bad.  So, my question is: Why are mris SO LOUD?  Seriously, I was thinking (while I was in that hole for 30 minutes)– it is the year 2009, you’d think someone would have figured this out by now–Why does it have to sound like a Baggage Claim Buzzer gone bad?   It is SO loud that you can’t even hear the music in the headphones they give you.  OK, really–I am thankful for such great equipment that can tell us such detailed information.  I was thinking that too!

I’ll know next week sometime the results of these MRIs—we’ll have a better picture of where to go from here.  

We’ve had a crazy week around here.  Two of our kids have had the H1N1 virus.  Thankfully, they didn’t have it that bad.   We got on Tamiflu on day 2 of it—so they have not been terrible. Bailey and Luke missed 4 days of school–but both are going back tomorrow.  Christopher has been a trooper–and has survived this week-going to school every day!    Jerel and I had plans to take off tomorrow morning (once the kids were in school) to the beach for the WHOLE weekend by ourselves!!!—but we have postponed our trip a few weeks…we felt like we couldn’t ask anyone to come into our house with our kids just getting over H1N1—so now we just have 3 more weeks to look forward to our trip!

OK, we HAVE to start thinking about Halloween.  It’s only like 9 days away and we have NO idea what any one is being in our family.  A month ago we were ALL decided on the 3 kids being Harry, Hermione and Ron from Harry Potter—  but now they have decided NOT to do that.  (I still might talk them into it….Bailey and Christopher read all those books this summer and totally LOVED them—and you have to admit that Christopher would make a perfect Harry Potter–we’ve got to find some glasses).  But we’ve got to decide.  I never wanted to be the mom in line at Party City the day before Halloween just getting “whatever”— so hopefully we’ll decide soon so we can be creative with the costumes.  I think Halloween can be so fun– I’m sure I’ll post pictures of what we decide.

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Update 10-8-09

October 8, 2009

Hello Bloggers!  OK, I am so slack at writing new posts.  When Christopher broke his arm (back on Sept. 1)– it threw everything off –and then we really got full swing into school, piano, soccer, etc.  We went to Hilton Head (maybe worth another blog post soon!), went to a U2 concert (amazing-another good blog post!!)– and Dana was in town….so we’ve been having FUN!  No blog posts usually means we are busy having fun.  🙂

I did go to Dr. Boyd, my oncologist today.  I finished up my 6 round of chemotherapy 2 weeks ago and was thrilled to be done with that.  The lastest PET Scan (in July) showed no evidence of cancer–so have been feeling good about that.  I went last week to have a blood test (a Tumor Marker study)—my number was going up back in the summer… 40s, 50s,60s… and I haven’t had a tumor marker test in a few months.  So, I got the results back today that my number is going down…it’s 42.  I cried when they told us that (in a good way) because I was worried about the possibility of it being way up and us not knowing why.  BUT, Dr. Boyd would really like my number to be less than 35–then it would be considered normal.  So, I’m thinking 42 and 35 are REALLY close to each other, right?  (And yes, we do know that this test is not always accurate..but we have no other way to measure anything going on in me— I have no real tumor–which is good!)

But No, he told us that he would like to consider doing more chemotherapy to work on getting that # down to normal.  So, I started to cry again.  And actually, I DO know I can handle more chemo and I know I can do it— I’m actually feeling pretty strong and feeling like a fighter again…. but I told him just the thought that he thinks I NEED it is what makes me sad.  We talked about different options– a pill form of chemo or to keep on the same regimen I’ve been on.  What we decided is that for now I will go get this fluid drained from my last surgery site (under my arm)—so I”ll see my surgeon next week to do that.  Then, in 3 weeks Dr. Boyd wants to take another tumor marker…and see if the fluid reduction will affect that #–and decide which way to go after that.  

All in all, I was very happy today to know that my # is not way up!!  But a little disappointed that he thinks it necessary to continue treatment.  So, we’ll just see how it goes.  I am very happy to have a month off!  Our family is going to “Camp Phoenix” this weekend at Camp Thunderbird with other cancer survivors.  It’s a weekend sponsored by Presbyterian Hospital and the Buddy Kemp Caring House.  We will stay in a cabin and they have all kinds of activities for us (canoeing, zip lines, crafts, family games) and they feed us.  My kids are really looking forward to it!  It will be fun to stay in a cabin all together and have some family time.  I really want my kids to not fear this whole cancer thing– we’ve got to be okay talking about it and living with it.  So, things like this help us.  Then, in 2 weeks, Jerel and I are escaping to the beach–just the two of us.  Thanks to my friend and former Youth Minister, Don Brock–who put this together for us!  

Pray for us–pray that my surgeon will be able to drain enough fluid that some of my swelling will go down and maybe alleviate some pressure building up. Also, that that # will go DOWN!  We want to see it in the 30s!  During the last month, I have started reading the Bible straight through.  (I’ve NEVER done the whole thing!)– I’m in Deuteronomy right now… and I’ve been amazed the past few weeks at how much God rescues His people, and He responds to their cries for help.    

I’ll take lots of pictures at the camp this weekend, so I can post those next week.  Thanks for keeping on checking on me.  Lots of you have asked about me and that’s why I go into this much detail (about the numbers and stuff!).

LOTS of love,

Susan